Saturday, July 3, 2010

Whew...

Whew... what a week. I am so happy to see a long weekend! I have been through just about every emotion imaginable. We have seen more doctors these past few days than we have seen in a year. The good news is, it is over! Ben's surgery has been scheduled for July 15.

Just to give you a recap...
Ben does not eat. There is no medical explanation for this. He just doesn't eat. On a good day, he will get about 500 calories, which is not enough. He has stopped growing and is now losing weight. The doctors and his therapist decided that he would benefit from a feeding tube. This will get him the calories he needs in addition to helping his body recognize hunger. The goal is for him to gain 10 pounds and begin to eat. In the end, our hope is that he will be able to eat enough to sustain himself. So, feeding him through the tube will eventually help him eat by himself (kinda backwards huh).

We will check in the 15th. The surgery will be preformed and if everything goes well, we should be home the 17th. We met with the surgeon and the GI (love him). I learned the details of the surgery and what we could expect. As far as surgeries go, this one has a low risk of complications. I also spoke with a nurse that told me that most children are not in much pain after this surgery. She said in most cases, Tylenol is all they need to give to control pain. So, now we wait...

I hope ya'll have a great holiday weekend. Be safe and remember those that fight for our freedom.

4 comments:

  1. Oh gosh, I hope everything goes great for you all!

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  2. You and your family will be in our prayers for sure.
    It was good talking to you at the park the other day. Daniel loved playing with Will for a little while, it was all he talked about the rest of the day.

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  3. Your family is definitely in my thoughts and prayers!

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  4. We will be thinking about ya'll over the next few weeks. If you need anything let me know.

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